Satuday, April 18th 2009
Tonight I am at the hospital with Jacob and write this blog as I watch my beautiful angel sleep peacefully. He had a good day overall. Slept most of the morning and the rest of the day we just hung out. Daddy went home early today to try and get the baby's room done. So it was a long day for us but a good one. We attempted to go outside for a bit but it was colder than expected so a bit of fresh and back in we came.
Yesterday, Jacob had his feeding study. The day started really rough, he was very sick and vomiting blood and over exhausted his little body was but was able to shake it off and we went ahead with our day. His test, i am happy to say, went well. This is the first good news we've had in quite some time. The swallowing motion is there BUT his gag reflex is so strong, from protecting himself for the last 5 months, that as soon as he would swallow the pudding, he would cough. But according to the occupational therapists they say its just by habit and that he has improved greatly since his last study. So now this means Jacob has alot of hard work ahead of him but they will start to work with him on eating again. He must practice alot and it won't be easy but we are hoping that he will be motivated enough to get the job done. Its still going to take time but its nice to know that the chances of him eating again are good. Had a great evening after that.
Jason and I are so very proud of him, there's just no other way of putting it. I know you all hear us say how strong he is over and over but really this boy has more strenght and courage than you can possibly every imagine. As nervous as he was yesterday he sat there and tried his damn best and for that we love him even more than we already did, if that's even possible.
thank you all for your good thoughts.
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