Jacob Visits his Class

Wednesday, April 1st, 2009

hello everyone,
Well its been a busy few days. We are doing as well as can be. Jacob is still having tummy pains and vomiting but they don't seem to be as frequent. We don't know what that means. Not sure if its the meds or if he is just getting better but he is still very frustrated with his tummy pains. When they are there, they seem to paralyze his little body. Walking is not getting better but with his new braces he is a whole new person. He can walk on his own, bend down, get up, all the things he used to be able to do before all this happened. I am still so frustrated that this happened but now that he can function with his braces we are hoping it will just help his legs get stronger and go back to the way he was. We saw the opthamologist this week. Jason and I have finally decided to go with the permanent stitch of his left eye. We were fighting it for so long hoping it would eventually get better but the doctor is pretty certain that its healed as much as it is going to after 5 months. So we will be putting a permanent stitch at the end of his eye to help it close completely. This way, he has a better chance at regaining his vision. We are ok with it now. We don't care what his eye looks like, he is still beautiful to us and we now just hope we can save his vision. 

On a happier note. Jacob went to Disney on Ice. It was a beautiful day and we made it through the 2 hours show. He sat on Jason's lap the entire time and was mesmorized by the show. Jason on the other hand I think stared at Jacob the entire time. He was mesmorized by the smile on his son's face. Yesterday, we went to school!! It was suppose to be a short visit but it turned out to be an afternoon in class. Jacob walked into the classroom and without hesitation walked right to his seat. The seat that has been empty for 5 months TOMORROW. Its like he never left. I had to immedietely walk out of the classroom to shed some tears. It was the most overwhelming feeling I have ever had. It was happiness and the biggest saddness i have ever felt all at the same time because i then realized just how much he deserved to be there. He deserved to be a kid again. He doesn't deserve to be in a hospital bed fighting for his life. Its just not fair. 

He had a wonderful day. One of the best days we have seen in a long time!! 

Sharon, i like that quote. It is absolutely right, everyone asks us how we do it, how we get through the days. We don't have a choice, we have to....because Strong is all we've got...can't put in better words.

Nada, I was only able to listen to that song once, it was all my heart could take but boy is it the outline of my family. 

I am again overwhelmed by all your support. I will end this blog for now as tears have blinded my computer screen.
Goodnight.